Cooperation with other experts in our field is a very important part of EX-Center’s work, as many of our patients have several complex diagnoses.
Local cooperation
EX-Center works closely with Rehab Station Stockholm, the Neuropediatric Clinic at Astrid Lindgren’s Children’s Hospital, the Hand Surgery Department at Södersjukhuset [Southern Hospital], the Children’s Orthopaedic Department at Astrid Lindgren’s Children’s Hospital, and with all of the orthopaedic engineers at the orthopaedic workshops having agreements with the Stockholm County Council.
National cooperation
Because the team helps EX-Center patients with all kinds of problems in different parts of their lives, we have a great deal of cooperation with authorities and other social actors. We cooperate often with the Swedish Social Insurance Agency, the municipality, and the county council. We also work closely with various user organisations such as the Swedish Dysmelia Association, RTP-S [Swedish Association for Survivors of Accident and Injury] and DHR [the National Swedish Organisation for Disabled Persons].
EX-Center cooperates with clinics at several university hospitals as well as with children’s and adults’ habilitation clinics around the country. Examples of these are:
• Dysmelia and Arm Prosthesis Unit at Örebro University Hospital
• Treatment Group for Dysmelia and Arm Amputation [Abbreviated BEDA in Swedish], Skåne University Hospital, Malmö
• Arm Prosthesis Unit and Walking School, Sahlgrenska University Hospital, Gothenburg
• Arm Prosthesis Centre, Sahlgrenska University Hospital, Gothenburg
• Orthopaedic Clinic, Sahlgrenska University Hospital, Gothenburg
International cooperation
• ISPO.
• DysNet (Dysmelia Network) (www.dysnet.org) is a global network for people with congenital multiple limb deficiencies (dysmelia), and for people who work in the field of dysmelia.
• Thalidomide Trust, England.